After meeting with a psychologist for Fuzzy, I have again come to terms that respite is okay and is better for our whole family then any snickers of division. People that do not understand what our lives look like and our needs to regroup need not snicker. And if they do, I guess I need to build up that wall.
We are having a new PCA that is interested in respite do a night this weekend. For the first time ever, I am excited because there is no emotional relationship with her and I and so we will get this right the first time, not keep hoping that it works out.
Why doesn't it work out? Because we have felt that the respite used in the past winds up being nothing structured for the kids, and we would like that. Then, our "break" is usually bitter sweet when we realize that they haven't bathed, have icky dirty nails, wrecked clothing and shoes, and other situations that make us feel that the care is not really what we had in mind. This is, and I am so excited. We are going to make it a camp out fun time for them, like a mini vacation...and I can't wait!
I purposely scheduled it for the girls weekend here, but now they likely won't be joining us til Saturday anyhow. They have had lots of drama lately on their time here, so not complaining. Clearly reflects the negativity they are consumed with in their other home. If only we could get them more, but in the mean time we will take what we can get and hope for the best.
So for this I am most excited for the weekend! Fuzzy has been purposely guzzling water to wet through his new pullups because we are having them delivered now from a medical supply company. Then for the 3rd day in a row after "leaking" he lied about the sheets, didn't want them washed!%*#@% if that tells you anything. YikEs!
I am going to valleyfair with Buzzy in June with school, so that will be tons of fun (I really hope because I love that place...please let me enjoy it Buzzy!!) Wishing for this feeling of cheer to continue into the summer when all the kids are home too, not just now at 709 when the 4 have left and the little two are still sawing logs. Have a great day...I know I will!
Thursday, May 12, 2011
Monday, May 2, 2011
Happy's IEP
Not really looking forward to that crap today. IEP= Individualized Education Plan. But I am not happy with hers. Her processing and memory impairments are not apparent in the 2nd grade classroom setting and therefore there is a great difference in the girl we are discussing from home to school.
I tell myself that is fine, and when they give her greater independence and less structure- such as at home, they will be surprised to learn that she is not really where they think she is!
The report card was downright false, saying she tells time and communicates well. Really? Have you talked to her lately? Whatever, I will be supportive of her education and just advocate for her to receive services as they are offered to her. I have fought for what she gets as of now. Last year they were not going to test her in communication.
I said they were. They did. The parents is always right, if they are not sure then call in the big dogs. I like big dogs! But Happy is a tricky kid and I understand that her expectations right now are not identifying her specific and quirky challenges. Executive functioning...4th/5th grade? I hate waiting, but unless I want to do it myself I have to just sit and wait. Sit down and shut up is what I have coined the district's roadblocks to qualifications. I can do that, but someday I will not have to and they will see what we see and my baby will keep making improvements with our without their constant understanding of her issues.
So Lue isn't crazy about IEPs but I like numbers and feeling like I am not alone against them, maybe I should see if a PCA will go with me. Lue says he isn't following the meetings always anyhow. I thought it would be good because we have Lua's IEP meeting (they require an annual meeting) next Monday. Thought it would stir up his intellect. Then I decided fine, I am so tired of orchastrating child care and what have you, why should I feel bad of asking my inlaws to babysit? They live less than a mile away, you'd think I could get them weekly. But I hate asking. Lue would rather not go and so I am compensating that idea negatively justifying that he usually doesn't contribute much and of course says the wrong things because I am perfect. haha. I guess it doesn't matter. Right now is not much chance to get anything more for her, so I am fine. I am going to pull out my reading charts they have been half-ass providing me. According to the IEP they are non-compliant as they are not sending them weekly.
Why did I fight for the language to get those weekly reports and then not do anything with them? Well not sure. But for todays meeting I will whip them out to show that their weekly goal of hers to gain improvement and the regression with stagnant weeks does not put her anywhere near they intended her skills to be, so what are they going to do about it?
Likely nothing.
We'll see how today goes. Wonder if I will make it through the meeting without crying about my baby they want to slip on through the cracks with bullshit excuses. Sorry for my language...lack of better terms?!
Have a Stellar Day, my couple readers...if any...to the open space of the unknown where i reach my words and tone to the underlying presence my Lord captures my feelings and cradles me kind, with room to grow and leave behind the pain the tears and all my fears. in the end I will surrender to the highest authority who created the world, beginning and end, alpha omega, in the middle of my little mess I remember how much I am blessed... THANK YOU JESUS!
I tell myself that is fine, and when they give her greater independence and less structure- such as at home, they will be surprised to learn that she is not really where they think she is!
The report card was downright false, saying she tells time and communicates well. Really? Have you talked to her lately? Whatever, I will be supportive of her education and just advocate for her to receive services as they are offered to her. I have fought for what she gets as of now. Last year they were not going to test her in communication.
I said they were. They did. The parents is always right, if they are not sure then call in the big dogs. I like big dogs! But Happy is a tricky kid and I understand that her expectations right now are not identifying her specific and quirky challenges. Executive functioning...4th/5th grade? I hate waiting, but unless I want to do it myself I have to just sit and wait. Sit down and shut up is what I have coined the district's roadblocks to qualifications. I can do that, but someday I will not have to and they will see what we see and my baby will keep making improvements with our without their constant understanding of her issues.
So Lue isn't crazy about IEPs but I like numbers and feeling like I am not alone against them, maybe I should see if a PCA will go with me. Lue says he isn't following the meetings always anyhow. I thought it would be good because we have Lua's IEP meeting (they require an annual meeting) next Monday. Thought it would stir up his intellect. Then I decided fine, I am so tired of orchastrating child care and what have you, why should I feel bad of asking my inlaws to babysit? They live less than a mile away, you'd think I could get them weekly. But I hate asking. Lue would rather not go and so I am compensating that idea negatively justifying that he usually doesn't contribute much and of course says the wrong things because I am perfect. haha. I guess it doesn't matter. Right now is not much chance to get anything more for her, so I am fine. I am going to pull out my reading charts they have been half-ass providing me. According to the IEP they are non-compliant as they are not sending them weekly.
Why did I fight for the language to get those weekly reports and then not do anything with them? Well not sure. But for todays meeting I will whip them out to show that their weekly goal of hers to gain improvement and the regression with stagnant weeks does not put her anywhere near they intended her skills to be, so what are they going to do about it?
Likely nothing.
We'll see how today goes. Wonder if I will make it through the meeting without crying about my baby they want to slip on through the cracks with bullshit excuses. Sorry for my language...lack of better terms?!
Have a Stellar Day, my couple readers...if any...to the open space of the unknown where i reach my words and tone to the underlying presence my Lord captures my feelings and cradles me kind, with room to grow and leave behind the pain the tears and all my fears. in the end I will surrender to the highest authority who created the world, beginning and end, alpha omega, in the middle of my little mess I remember how much I am blessed... THANK YOU JESUS!
Subscribe to:
Comments (Atom)