BlendedFamilyOneGoal: June 2011

Friday, June 10, 2011

Rapid Respit

As in meaning that I we are using lots of hours now, they expire in June and we were told to use them or we will not be able to get services someday if we really need them and it is good for us and the kids.
Tonight they are going over to the new girls and doing a parade among other things, I am sure they enjoy that focused cognitive therapy that we cannot provide. Even Lillu has progressed in certain concepts that make some repeated conversation and general topics beyond my capacity at that point. Having these names really throws me off. I should have picked better ones that have some meaning or something, I am like...what's their name? whatever the little bio boy.
so i need to print and finalize my pca schedule this summer and we are doing 9 hours a week of 1:1, more than we usually do in a month! So i hope that we see some progress for the kids. Fuzzy has been off his rocker lately with the ODD. And we tried zoloft, it didnt work! Now I feel discouraged to meet with the psyciatrist, but really that is what we should do. It is borderline intolerable because it goes with no rhyme or reason and only continually ostracizes him. Excuse me while I go look up that word.

Thursday, June 2, 2011

summer calendar

i am so excited to do my calendar. every summer and every school year, and every new year...I get to get some markers and hash up a clean crisp, empty month. Well they are starting to get scattered and randomly filled with various appointments and obligations.
today my main pca is bringing her summer schedule, and just yesterday I go the boys summer schedule. we will be ready to roll. we are for the first time ever using the hours for a 1:1 theraputic setting with various themes with attempt to improve function that requires assistance to begin with. Sounds like fun, I know...but i really have mixed feelings about that commotion it may bring in the home, that is why we are going to be a set schedule and minimize transitions, those are most annoying around here.
also doing something big, and I am trying not to play the guilt game. but as that therapist said, if people don't understand our needs for respite then they just don't get it and that doesn't matter to me or what we need anyone of us in our family.
we need to go on a vacation setting and get to experience that without the constant chaos. also, the girls, being with their dad every other weekend, and than having so much consumption with the different special needs of each child- well they need to have some time in a less structured environment that things always need to be at home for the best of everyone. following me here...it's just what we are doing. and it should be a great time. i am really looking forward to it. we are doing respite on that friday, and so i will have the whole day to get everyone ready and then. then if uncle or grandma and grandpa don't come up then we will try and sucker a pca into doing it- but waiting on Lue to find out for sure, as it really preferred. Lua has drivers ed in the morning, well she is checking with her friend- evidently the dates were wrong and it is a secret what the real dates are or something. Small town water tower scandal. heard of it? just kidding. but then the girls will get a ride home with someone too. it is a win win. a night of respite, a night of all 8, a night of our regular 6. win win win. put that on your calendar!

Confusing Family Tree or Cartoon Reality?

Buzzy and Fuzzy ages 13 and 14...ready for the world...living in the moment. Possible trauma and rad affects their ability to have realistic outlook to life.

Happy is a walking tickle me elmo. Very resilient, yet following some social skills that look like Fuzzy's ODD. Lost services last year after having them since 18 months. Has most benefited from the constant modeling her sister older by 5 days has provided for her.

Lilme, our apparent model, has her own set of issues, and sometimes the questions of what life would have been without the family dynamics changes we created and allowed. Seems to have some behavioral emotional events and can be pretty demanding.

Lillu is keeping up pretty good and is full of energy. Now we just don't want to wreck it!

Liltoo loves everyone and the balance the baby creates is even better than a pet, she has a magical way of bonding our family and lightening many frustrating moments.

Lulee 10 and Lua 14 are testing the waters of independence as they are primarily raised in an environment we have no control over and infact cringe at some of their everyday.

Lue is one hard working hubby that does great. Doesn't have a relationship with his dad- who Buzzy, Fuzzy, and Happy have also as a biological dad.

Retardo, per Spanish pronunciaton, Lue's dad most recently contacted us saying that he needed 15K in two weeks or he would take Lue to court. Years ago, when they abandoned their fire property, Lue retreived as a gift a totally dismanteled vehicle. By totally dismanteled there was not a screw in place.

Retardo and his wife, Hall, blame us for not letting them see their kids even though the other 3 they have no idea where they are.

Farmers, the family that adopted M & A, after we had our homestudy ready and spent thousands of dollars trying to get them. Thought they were trying to kill M and reported them to SS this summer. Blocked my number and removed me from FB. This is a woman that doesn't even talk to her immediate family, so not ready to have any emotional relationship and or reconciliation attempts. She knew that we would have turned them in. The kid weighed 44# and was nearly 11. Lathargic, on a compromising diet (gluten and dairy free) for behaviors. They said last winter they would check in the morning to see if he had made it, like livestock or something.

The oldest of the 6 kids that got taken from Retardo and Hall is in long term foster care, against our original ideas. We have come to terms with God's plan but look forward to the future to see what type of relationship the kids will be capable of having. They all have significant social, learning, and processing problems that no blood work, mri, or testing can really label. Sometimes a label helps us to better understand what the future holds.